It’s official. We are having a great summer! Finally! We have been having so much fun doing normal summer things, that I have not had time to update. Now that is a problem I can handle. I do not want to sound greedy, but I hope to have the same problem next summer and every other summer for years to come.
Remember Zack’s summer bucket list? Learn to play tennis? Zack worked hard all summer and can now actually hit the ball most of the time. Serving is still in the infancy stage, but it involves multiple steps and movements and that has always been a challenge for Zack. This time I actually have some pictures!
Zack and his amazing coach! Mr. Brecker is our girls high school tennis coach. During the summer, he runs a great tennis program for kids in our area. He has the amazing ability to give meaningful praise to every child. I believe this is the main reason Zack loves tennis. He believes he can do it even when it is hard and his body doesn’t cooperate like the other kids because Mr. Brecker believes in him. You know I love that!
Zack FINALLY began karate a few weeks ago. We had been trying to get started for a few months, but had a few obstacles in our way. Once we got those resolved, Zack was thrilled. The most exciting part for him? His uniform. He has been wanting to be in a sport so he could wear a real uniform. It is always great when a dream is realized. Especially when you are nine!
Another dream our boy had was to learn to climb a tree. We found a tree with a low branch. He got up on it and felt pretty cool. He thinks we need a tree house in our yard now. Too bad our trees are still too little….or maybe that is a good thing!
We are leaving soon for our first vacation in three years. You’ve heard me say that a few times now, but I keep on repeating it. Three years, people! We keep on pinching ourselves. We are thrilled Zack is finally well enough to do this.
While things are infinitely better than they have been, we are still watching the normal bothersome issues. Zack’s sodium levels continue to be a pain. They are low again this week, but that is most likely because his output was crazy this week. We are so happy that Zack’s doctor’s discovered CeraLyte. I believe that CeraLyte has helped keep Zack out of the hospital these past few months. We seem to be able to manage his sodium even though it is still low. Zack’s doctor frequently checks his labs to make sure he is safe. We still do not know why his stoma loses so much fluid daily. It would be nice to figure that out one day.
We are still dealing with his pesky stoma swelling and constricting his output. Things are still manageable, so I am trying to relax about the whole thing. Note I said trying. I tend to get freaked out when hours go by without output and when his stomach is no longer soft. It is really hard for me to imagine this will not get worse, but so far things are resolving with rest.
I guess with all chronic illnesses, finding ways to manage things is key. I feel like that is what we are doing now. I much prefer managing things to going from one crisis to another. Score one for Team Penrod. It’s about time.
Now, about that vacation…..
Hug your babies!