Hola! Have you missed me? We had a little setback here and I just did not feel like writing about it until now. Much to my surprise, I’ve learned that people other than my family actually read this blog! Last night our small group from church met at our house and one of the guys asked me why I stopped writing. Whoa! You read my blog? Thanks! That was such an unexpected blessing in the middle of a yucky week. Let me tell you all about it. You’ll probably need a drink and a comfy spot to snuggle into because you might be here for a while….
In the over 22 years my husband has been in the military, we have never lived by family. Living near DC, we are blessed to be near lots of family. It can be overwhelming at times, but it is mostly good. One of the best parts is that my boys get to see some of their Aunts, some of their cousins and one of their Grandma’s often. Last Thursday, we had a “date” to have dinner at Chick-Fil-A with Grandma, Aunt A and two of our cousins. Zack was so excited. He doesn’t like Chick-Fil-A (crazy, I know), so we packed his dinner and off we went. A fun time was had by all. Seriously. It is so fun to watch Zack play with his cousins. He loves them to pieces. I think Jake, our other son, had fun as well since he was able to bring a friend along.
After being in the play area, it is my rule that the child must be bathed. Who knows what germs lurk in there! Upon entering the bath, Zack started complaining that his stomach hurt and that he had a cramp and needed Motrin. I thought it was a bit odd, but he does comment on his stomach hurting from time to time, so I didn’t really give it too much thought. Ten minutes later, he again commented on his stomach hurting. My interest peaked. From then on, Zack was crying in pain every 10 minutes.
Jim and I changed his wafer, got him into bed and tried to make him comfortable. At 11:45, after we decided he really was not feeling well, we finally gave the child some Motrin. Remember..I told you we don’t like to dispense meds around here! Zack finally fell asleep sometime after midnight and I headed to bed.
At 3:00 a.m., Z began crying again. This time he also began vomiting and it was not a pretty thing. Every 15-30 minutes he was sick. He started telling us that he wanted us to call his doctor, that his doctor knew everything and would be able to solve his problem. It was at this point that we knew he was serious about feeling bad. I “slept” with Zack and tried to comfort him until it was a reasonable hour of the morning to text his doctor. By 7 a.m., I decided the hour had come. His doctor said to take him to the ER and off we went.
By the time we arrived at the ER, Zack was so weak he could not walk on his own. His eyes were sunken and he looked terrible. He was taken right back to a room, an IV was started and all kinds of people were called. We went to x-ray and then saw Zack’s surgeon who happily reported that Zack did not have another obstruction and that he was fairly certain that whatever was going on with Zack was not surgical. Always good to hear! We saw the pediatric resident who felt that Zack had a stomach bug and told us that his white cell count was high and his glucose was pretty high as well, but both could be explained by the sickness. We also saw Zack’s GI doctor and he agreed with the other doctors. After some discussion between all the teams, it was decided that with his history, and the amount of fluid he was outputting, it would be best if Zack were admitted.
Thus began our four day stay at Walter Reed.
Did I mention that on that same day our dear friends were arriving to visit us from Germany? We had plans to have fun and stuff. Luckily, our friends were gracious and understanding and made their own fun with Jake. One night when I came home from the hospital, all of my lightbulbs had been changed out to black lights and there was a serious nerf gun battle occuring, complete with loud music and strobe lights. I’m happy to say that nobody shot my sprinkler heads or there would have been some mighty sad people in my house.
Back to Zack. Jim and I figured we would take Z to the ER, they would give him fluids and we would be on our way. Needless to say, we did not bring anything useful, like say clothes, or a toothbrush, or something to sleep in or anything to do while waiting for Zack to recover. Oh, and our laptop is kaput! How can one type without a laptop? We really need to get a new one soon! Anyway, my sister came to the rescue and brought me a bag full of goodies. Bless you, Carie! She was also able to witness all the staff in their infection containment gear as it was decided that Zack should be tested for an infection called C. diff. The doctors felt he was at risk after his hospital stay this past summer. He did not have it, thankfully, but we got a good giggle out of watching everyone suit up. I don’t know why we didn’t have to be careful around Zack, but I guess that is something I can live without knowing.
When Zack was admitted, the ER did not have any other cases similar to his stomach bug. The doctors told us that by Saturday, there were lots of other children coming in with the same symptoms. One of the lessons we learned from this virus is that what is a normal stomach bug for most kids can quickly become dangerous for a kid with an ileostomy. We knew Zack was more susceptible to dehydration. The doctors drilled that into us over the summer. I guess we were feeling pretty confident about our hydrating abilities after surviving all those hot summer days without incident. Needless to say, we were totally shocked at how quickly Zack dehydrated with the stomach flu. He started vomiting at 3:45, talked to the doctor at 7:00 and we were on our way to the ER by 8:00. I don’t think we could have done things differently. We are hopeful that maybe this bug was just particularly nasty and that next time it won’t be as bad. Be assured that if it does happen again, we will be watching him like a hawk!
Whew. Are you still with me? So we have other children. Shocker! I try not to talk about them without their permission, but this story goes along with the stinky week. Our oldest son attends the University of Colorado in Boulder. You know, the state with all the flooding? Yep. That one. Our son sent us a picture at 3:15 a.m our time on Friday morning showing us how his basement flooding. The basement happens to be the location of his bedroom. I woke up, saw the photo, turned on the weather channel and started trying to reach our guy and NO ANSWER! I tried reaching him by FB, txt, friends, etc. and we could not find him for over 5 hours! It turns out he was sleeping. Ummmm…..We now have a rule in our family that if you are in a natural disaster you MUST keep your phone on……I am happy to tell you that he is fine. My nerves, however are recovering.
Just for fun, I thought you might enjoy this video of the flooding on campus. The student in the innertube is Drew’s roommate. They are in the honors program. Yes. It’s true.
To top off the week, Zachary started complaing that his stomach was hurting again over the weekend. His output was up to 1200 ml/day. His output should be about 400 ml/day with Imodium. He wasn’t eating, had little energy and was totally freaking me out. His was down to 700 ml yesterday and looks like it will be about the same today. He is eating a bit more, but still not drinking much. His energy is improving and he made it through the school day without incident. Here’s a picture of how he was feeling.
Tonight, as I put Zack to bed, his eyes were red, he was super tired and my mama radar tells me he still does not feel well. His endoscopy procedure which was to take place on September 10 was postponed until the 27th. If he is sick again, we will have to postpone the procedure again. In the end, I guess it won’t really matter. I just find it hard to gear up for sending my guy off for general anesthesia and then having to regroup and do it all over again. It is draining.
I also have to admit that I was surprised by how exhausted Jim and I felt when we got home from the hospital this time. It was a much easier stay, less serious, and much shorter, but we both felt completely drained by the time we got home. After a few days to reflect, I believe it is because we don’t sleep well in the hospital, seeing Zack sick is hard and it brings up questions about Zack’s future that really nobody can adequately answer for us.
I debated writing this post because I really didn’t have anything nice to say and we all know if you don’t have anything nice to say, you shouldn’t say anything. But then I thought about why I started this blog in the first place. To help other families learn from our circumstances. The main thing I want everyone to know is that dehydration is no joke for kids with ostomies. It can happen fast. Luckily, we made it to the ER and they hydrated Zack and all is well.
I also realized that it would be really wonderful to meet another family with a child who has an ileostomy. There are things that would be great to discuss with others in our same situation. I’m sure we will meet another ostomate one day, but until then, hopefully something I write will help another mom. If not, at least I’ll be able to keep our family and friends up-to-date on our crazy life around here. If you made it this far, thanks for reading!