Ah….the ever-changing plans of Mr. Zack Penrod. After planning to be gone for Christmas, packing all of our gifts, arranging hotels and wrapping our minds around celebrating in a new place, we are back home. I have to say, there really is no place like home. Our beds are cozier, the food is better, we have more space and we can lounge around all day in our pajamas (well, we could…).
Zack has been feeling OK since his discharge. He did not feel great on our ride home. He looked sick and his stomach was hurting. When we stopped for lunch, he asked Jim to carry him and he barely touched his food. It was his first day off of pain medicine and fluids so this is not really surprising. We may also have forgotten to pack Tylenol….not that we would have done that after all this time. Sigh. Poor Zack.
When we got home, Zack’s friends were outside and gave him a cheerful welcome home. Zack managed to stay outside for about two minutes before declaring he was cold and tired – it was 62 degrees. He has been sleeping sitting up (his belly pain position) since we got home. Luckily for Z, we actually have pain medicine at home AND give it to him when necessary.
Yesterday was a little better. We finally made it to Sports Clips for a much-needed haircut. In between turning pale and not being hungry, he had several bursts of energy that were so amazing his brothers declared themselves in time-out to escape the craziness.
We are working on figuring out this new mucous fistula. Unfortunately, it sits at the bottom of his abdominal incision right where the waistband of his pants hits his belly. His surgeon said she put it there to cut down on the prolapsing risk. Another thing that might prolapse? Awesome.
Our biggest issue at the moment is keeping up with his crazy output. We have to start giving him bolus fluid doses through his g-tube to keep up with his losses. He currently has his dehydrated look going on, but we feel confident we can handle it here at home.
We also had our first visit from Zack’s new Home Care nurse. His PICC line dressing needs to be changed once a week. Since it is a sterile procedure, I am not qualified to do it by myself – thank goodness. I am sure I could learn. I have been told that some families do it themselves. I am just grateful that someone else is doing it for him as I do not feel comfortable messing with a line that ends right near his heart. I would much rather have someone take over that responsibility!
Now that we are home, this family of mine actually expects our Christmas traditions to happen. You know, the food part. Trying to pull together all of the things we do for Christmas would be pretty hard, so we took a poll and picked some of our favorite things. Today we will make two Christmas goodies, have our normal Christmas Eve fondue before church and homemade cinnamon rolls for breakfast on Christmas morning…or candy from our stockings. Come on! You know this happens!
Our awesome next door neighbors have invited us to share their Christmas dinner with them. I am not sure who is more grateful for the invitation, me or my guys. Thank goodness for friends who see our weary faces and extend kindness.
Do not let our lack of energy fool you, though. The Penrod family is counting our blessings this Christmas. We have been overwhelmed by the outpouring of love so many have shown us. I get teary even thinking about it. Santa coming to visit Zack on the fire truck, classmates cheering for Zack, friends giving Zack encouragement, invitations to dinner, packages and cards arriving at the hospital, doctors and nurses working hard to get us home for Christmas, all of these blessings….we are so thankful.
So while Zack may not back to normal, he is incredibly happy to be home and counting the hours until the “jolly old guy” arrives. He wants to be allowed to sing tonight at church because, “Ms. Judy is counting on me to be there to sing to all the people about baby Jesus!” And that, my friends, is the real joy of Christmas. The birth of Jesus. I am so thankful that we are home and that Zack will get to sing tonight and share his joy with others. May we all have such childlike faith!