Welcome! I’m so glad you stopped by. My name is Dawn, married to my handsome guy for 23 years. Together we have 3 energetic boys. We are a recently “retired” Air Force family just getting used to the idea of settling down in one place!
My blog chronicles our adventures raising a child with special needs and what that looks like for our family. Our youngest son has a balanced inversion of chromosome 12, learning disabilities with scattered skills, fine motor and gross motor delays, speech delay and unmatched cuteness.
In addition, Zack has suffered from severe chronic constipation for years causing an enlarged sigmoid colon. This past summer he underwent an ileostomy to divert his stool away from his large intestine and out through his abdomen through a stoma. This allows his large intestine to heal and shrink back to normal size. Unfortunately, he has had many complications and is currently living with a prolapsed stoma. That means that by the end of each day at least 6+ inches of his intestines are outside of his body. Most days recently, it has been more like 9+ inches.
We are currently in the process of being referred to Cincinnati Children’s Hospital with the hopes of finding a surgeon who can help Zack. We hope you are encouraged by our story and maybe even learn a thing or two along the way!