Welcome! I’m so glad you stopped by. My name is Dawn, married to my handsome guy for 28 years. Together we have 3 energetic boys. We are a proud, retired Air Force family just getting used to the idea of settling down in one place!
My blog chronicles our adventures raising a child with special needs and what that looks like for our family. Our youngest son has a balanced inversion of chromosome 12, ACTG2 gene mutation, learning disabilities with scattered skills, fine motor and gross motor delays, ADHD, speech delay and unmatched cuteness.
In addition, Zack suffered from severe chronic constipation for years causing an enlarged sigmoid colon. In 2013, he underwent a diverting ileostomy. We had hoped his large intestine would heal and shrink back to normal size. It appeared to be working and reattchment was performed. Unfortunately the reattachment was not a success and Zack needed to have another ileostomy placed. Along the way, Zack has had numerous complications – obstructions and prolapses – and has had ten surgeries to try and revise and repair issues as they arise.
Zack has been cared for by Walter Reed National Military Center, Cincinnati Children’s Hospital and Boston Children’s Hospital. We hope you are encouraged by our story and maybe even learn a thing or two along the way!